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National Support

  

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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Attention Deficit Hyperactivity Disorder (ADHD)
  • The Hyperactive Children's Support Group (HACSG) provides help for ADHD/Hyperactive children and their families.
    Phone: 01243 539 966
    Website:www.hacsg.org.uk

Aspergers 
  • As teens
    A parent group from around the country with a common aim - to try and bring about some kind of change in relation to services provided to children and teenagers with Asperger's Syndrome.
    Website:www.asteens.co.uk/ 

Asthma
  • Asthma UK
    Provides a wide range of information materials about asthma. 
    Phone: 0800 121 62 55
    Website:www.asthma.org.uk/    

Ataxia
  • Ataxia UK
    Support people affected by ataxia and fund research into causes and potential treatments.
    Phone: 0845 644 0606
    Website:www.ataxia.org.uk                                        

Autism
  • National Autistic Society
    Provide individuals who have autism and their families with help, support and services that they can access, trust and rely upon and which can make a positive difference to their lives.
    Phone: 0845 070 4004
    Website:www.nas.org.uk 
  • Parents for the Early Intervention of Autism (Peach)
    UK parent-led charity established to promote early behavioural intervention for young children with autism, Applied Behavioural Analysis (ABA), often referred to as the Lovaas Programme.
    Phone: 01344 882 248
    Website:www.peach.org.uk 
  • Treehouse
    Treehouse is the national charity for autism education.
    Phone: 020 8815 5444
    Website:www.treehouse.org.uk

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Brain Injury
  • The Child Brain Injury Trust (CBIT)
    Offers support, information and training on childhood acquired brain injury.
    Phone: 0845 601 4939
    Website:www.cbituk.org 

Brittle Bone Disease
  • Brittle Bone Society
    The society gives help and advice on benefits, mobility, education, equipment, medical issues including genetics.
    Phone: 08000 28 24 59
    Website:www.brittlebone.org 

Bullying
  • Bullying UK
    Bullying UK helps a wide range of parents, pupils, teachers and youth organisations with practical issues around bullying.
    Website:www.bullying.co.uk 
  • Victim Support
    Helps people affected by crime.
    Phone: 0845 30 30 900
    Website:www.victimsupport.org.uk

Cerebral Palsy
  • Scope
    Provide services for people with cerebral palsy, their families and carers with a focus on early years, education, work and independent living.
    Phone: 0808 800 3333
    Website:www.scope.org.uk 

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Children and Young People
  • Child Poverty Action Group
    Campaigns for the abolition of child poverty in the UK and for a better deal for low-income families and children.
    Phone: 020 7837 7979
    Website:www.cpag.org.uk
  • Childline
    A free confidential helpline for children and young people in the UK. You can talk to ChildLine about anything, 24 hours a day. 
    Phone: 0800 1111
    Website:www.childline.org.uk
  • Connexions Direct
    Offers young people aged 13-19 information and advice needed to help make decisions and choices.
    Phone: 080 800 13 2 19
    Website:www.connexions-direct.com
  • Department for Children, Schools and Families (DCSF)
    Aims to make the United Kingdom the best place in the world for children and young people to grow up.
    Phone: 0870 000 2288
    Website:www.dcsf.gov.uk
  • Rathbone
    Provides opportunities for young people to transform their life-circumstances by re-engaging with learning, discovering their ability to succeed and achieving progresson to further education, training and employment.
    Phone: 0161 236 5358
    Website:www.rathboneuk.org
  • Young Minds
    Works to improve the mental health and emotional well-being of all children and young people.
    Phone: 0808 802 5544
    Website:www.youngminds.org.uk

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Communication impairments
  • Afasic
    Helps children, young people and their families affected by the hidden disability of speech, language and communication impairments.
    Phone: 0845 355 5577
    Website:www.afasic.org.uk 

Cystic Fibrosis
  • Cystic Fibrosis Trust
    The only national charity dedicated to all aspects of Cystic Fibrosis.
    Phone: 020 8464 7211
    Website:www.cftrust.org.uk 

Debt
  • Christians Against Poverty
    A national debt counselling charity working through a network of centres based in local churches.
    Phone: 01274 760 720
    Website: www.capuk.org

Diabetes
  • Diabetes UK
    Working for people with diabetes, funding research, campaigning and helping people live with the condition.
    Phone: 020 7424 1000
    Website: www.diabetes.org.uk 

Disability
  • AbilityNet
    AbilityNet helps disabled adults and children to use computers and the internet by adapting and adjusting their technology.
    Phone: 0800 269 545
    Website:www.abilitynet.org.uk
  • Contact a Family
    Provides advice, information and support to the parents of all disabled children.
    Phone: 0808 808 3555
    Website:www.cafamily.org.uk
  • Council for Disabled Children (CDC)
    The umbrella body for the disabled children's sector in England, with links to the other UK nations.
    Phone: 020 7843 1900
    Website:www.ncb.org.uk/cdc
  • Disability Information and Advice Line services (DIALs)
    Provides information and advice to disabled people and others on all aspects of living with a disability.
    Phone: 01302 310 123
    Website:www.dialuk.org.uk
  • Every Disabled Child Matters 
    The campaign to get rights and justice for every disabled child.
    Phone: 020 7843 6082
    Website:www.edcm.org.uk
  • Skill: National Bureau for Students with Disabilities
    Promoting opportunities for young people and adults with any kind of impairment in post-16 education, training and employment.
    Phone: 0800 328 50550
    Website:www.skill.org.uk 
  • The Challenging Behaviour Foundation
    Wants to see children and adults with severe learning disabilities having the same life opportunities as everyone else, including home life, education, employment and leisure.
    Phone: 01634 838 739
    Website:www.challengingbehaviour.org.uk

Down's Syndrome
  • Down's Syndrome Association
    Helps people with Down's Syndrome to live full and rewarding lives.
    Phone: 0845 230 0372
    Website:www.downs-syndrome.org.uk 

Dyslexia
  • British Dyslexia Association
    Aims to influence government and other institutions to promote a dyslexia friendly society, that enables dyslexic people of all ages to reach their full potential. 
    Phone: 0845 251 9002
    Website:www.bdadyslexia.org.uk

Dyspraxia

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Eating Disorders
  • Beat (beating eating disorders)
    Provides helplines for adults and young people, online support and a UK-wide network of self-help groups to help people beat their eating disorder.
    Phone: 0854 634 1414
    Website:www.b-eat.co.uk 

Education
  • ACE
    The Advisory Centre for Education (ACE) provides advice and information for parents and carers on a wide range of school based issues including exclusion, admissions, special education needs, bullying and attendance.
    Phone: 0808 800 5793
    Website:www.ace-ed.org.uk
  • Choice Advice
    Provides realistic, impartial advice for parents navigating the secondary school admissions system, particularly targeting their services at those parents who most need help with this process.
    Website: choiceadvice.dcsf.gov.uk
  • Dore
    Offers a structured programme of practical and constructive help, step-by-step and day-by-day, for people with learning difficulties.
    Phone: 0333 123 0100
    Website: www.dore.co.uk
  • Education Otherwise
    A membership based organisation that provides support and information for families whose children are being educated outside school.
    Phone: 0845 478 6345
    Website:www.educationotherwise.org
  • Independent Parental Special Education Advice (IPSEA) 
    A  national charity providing free legally based advice to families who have children with special educational needs. Advice is given by trained volunteers.
    Phone:0800 018 4016  
    Website:www.ipsea.org.uk
  • National Association for Gifted Children (NAGC)
    Supports those who are directly involved with gifted children - parents, teachers, schools and medical professionals - as well as advising policy makers at national and local levels.
    Phone: 0845 450 0295
    Website:www.nagcbritain.org.uk
  • Parentline Plus
    Works to offer help and support through an innovative range of free, flexible, responsive services - shaped by parents for parents.
    Phone: 0808 800 2222
    Website:www.parentlineplus.org.uk
  • Schools finder
    A web service through which to find schools, childcare services and Sure Start children's centres.
    Website:http://schoolsfinder.direct.gov.uk/
  • The Office for Standards in Education, Children's Services and Skills (Ofsted)
    Ofsted inspects and regulates care for children and young people, and inspects education and training for learners of all ages.
    Phone: 08456 404 045
    Website:www.ofsted.gov.uk 
  • Young Gifted and TalentedThe site to challenge, fascinate and inspire young people with gifts and talents.
    Phone: 0845 602 1732
    Website:http://ygt.dcsf.gov.uk 

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Epilepsy
  • Epilepsy Action
    A membership organisation and is one of the largest epilepsy membership organisations in the world.
    Phone: 0808 800 5050
    Website:www.epilepsyaction.org.uk 

Family Support
  • Action for Children
    Supports and speaks out for the most vulnerable children and young people in the UK.
    Phone: 0300 123 2112
    Website:www.actionforchildren.org.uk
  • Barnardos
    Supports families in many ways including fostering and adoption, disability and coping with domestic violence.
    Phone: 020 8550 8822
    Website:www.barnardos.org.uk
  • Cafcass
    Looks after the interests of children involved in family court proceedings.
    Phone: 0844 353 3350
    Website:www.cafcass.gov.uk
  • Citizens Advice
    Helps people resolve their legal, money and other problems by providing free information and advice, and by influencing policy makers.
    Website:www.citizensadvice.org.uk
  • DirectGov
    Advice for parents and carers on tax credits, childcare, parents' and children' rights, learning, development and education and many other topics.
    Website: www.direct.gov.uk
  • Face2Face
    The one-to-one befriending service for parents of disabled children.
    Phone: 0844 800 9189
    Website:www.face2facenetwork.org.uk
  • Families Need Fathers
    An organisation dedicated to helping parents and their families continue to provide the love, care and support that their children need after separation.
    Phone: 0300 0300 363
    Website:www.fnf.org.uk
  • National Society for Children and Family Contact (NSCFC)
    Promotes the case for mediation to break cycles of animosity, and works to ensure that welfare organisations and the courts serve the best interests of the child.
    Phone: 0870 766  8596
    Website:www.nscfc.com
  • Talking Point
    The first stop for information on children's communication.
    Phone: 0845 225 4071
    Website:www.ican.org.uk
  • The Children's Legal Centre
    The Children's Legal Centre offers free information and advice to parents.
    Phone: 01206 877 910
    Website:www.childrenslegalcentre.com 
  • Unique
    The Rare Chromosome Disorder Support Group
    Phone: 01883 330766
    Website:www.rarechromo.org 

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Hearing Impairments
  • British Deaf Association
    The BDA is the largest Deaf organisation in the UK that is run by Deaf people.
    Phone: 01772 259 725
    Website:www.bda.org.uk
  • Sense
    Provides expert advice and information as well as specialist services to deafblind people, their families, carers and the professionals who work with them.
    Phone: 0845 127 0060
    Website:www.sense.org.uk 

Health
  • Department of Health
    Provides health and social care policy, guidance and publications for NHS and social care professionals.
    Phone: 020 7210 4850
    Website:www.dh.gov.uk 

Muscular Dystrophy
  • Muscular Dystrophy 
    We are dedicated to improving the lives of all babies, children and adults affected by muscle disease.
    Phone: 020 7803 4800
    Website:www.muscular-dystrophy.org 
Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS)
  • AYME
    Offers lots of friendship-supporting services like an online community, pen-pals, e-mates, buddies and local get-togethers, all run by other young people with Myalgic Encephalopathy (ME) /Chronic Fatigue Syndrome (CFS).
    Phone: 08451 23 23 89
    Website:www.ayme.org.uk
  • ME Association
    Provides information, support and practical advice for people who are affected by ME/CFS/PVFS their families and carers.
    Phone: 01280 818968
    Website:www.meassociation.org.uk 

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Spina bifida and hydrocephalous
  • ASBAH
    Provides information and advice about spina bifida and hydrocephalus.
    Phone: 0845 450 7755
    Website:www.asbah.org 

Spinal injury
  • Spinal injury Association
    Offers support, assistance and services from the moment of injury and for the rest of a paralysed person's life.
    Phone: 0800 980 0501
    Website:www.spinal.co.uk 

Stroke
  • The Stroke Association
    Funds research into prevention, treatment and better methods of rehabilitation, and helps stroke patients and their families directly through its Rehabilitation and Support services.
    Phone: 0845 3033 100 
    Website:www.stroke.org.uk

Tuberous Sclerosis
  • Tuberous Sclerosis
    Supports individuals, promotes awareness, and seeks the causes and best possible management of Tuberous Sclerosis Complex (TSC).
    Phone: 0121 445 6970
    Website:www.tuberous-sclerosis.org 

 Visual impairments
  • Calibre
    Offers a free postal service of reading books for those who have sight problems, dyslexia or physical disabilites.
    Phone: 01296 432 339
    Website:www.calibre.org.uk
  • Royal National Institute for the Blind
    Offers information, support and advice to over two million people with sight loss.
    Phone: 0303 123 9999
    Website:www.rnib.org

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